National Support Groups and Newsletters
- MCS Friends (248) 301-2283 “We specialize in connecting our members to each other for social support and helpful information.” National and International in membership. Weekly conference calls and small quarterly newsletter.
- Chemical Injury Information Network (406) 547-2255. “The Chemical Injury Information Network (CIIN) is a support and advocacy organization dealing with Multiple Chemical Sensitivities (MCS). It is run by the chemically injured for the benefit of the chemically injured, and focuses primarily on education, credible research into MCS, and the empowerment of the chemically injured.” CIIN publishes a monthly newsletter, Our Toxic Times.
- Immune Web. Their interactive Yahoo groups provide information, questions and answers. Click on “mailing lists” on their homepage.
- Human Ecology Action League, Inc. (HEAL) (Archive.)
- Invisible Disabilities Association Their MCS focused web site is cleanerindoorair.org.
- New: Map of MCS People around the World. View the map, take the survey, or add yourself to the map.
- Local support groups are listed at the bottom of this page.
- Chemical Sensitivity Foundation (207) 725-8570. “The primary goal of the Chemical Sensitivity Foundation is to raise public awareness about chemical sensitivities.” The foundation provides videos, a bibliography of chemical sensitivities research, and other helpful information including this Chemical Sensitivities Brochure by Dr. Anne McCampbell.
- National Center for Environmental Health Strategies, Inc. Housing advocacy.
- Independent Living Research Utilization (713) 520-0232. “ILRU, founded in 1977, has a long history of providing research, education and consultation in the areas of independent living, home and community-based services, and the Americans with Disabilities Act.” See especially the document Understanding & Accommodating People with Multiple Chemical Sensitivity in Independent Living.
- National Council on Independent Living Advocacy and information. Examples of signage declaring fragrance-free areas and a tool kit for MCS accommodations can be found under their environmental health barriers section.
- MCS Referral & Resources. Professional outreach, patient support, and public advocacy devoted to the diagnosis, treatment, accommodation, and prevention of multiple chemical sensitivity and multi-sensory sensitivity. Documentation of the recognition of MCS.
- The EI Wellspring. Practical Tips for Coping with Chemical and Electrical Hypersensitivity
- Dr. Anne Steinemann’s Website Resources and Research about MCS and Chemicals in Fragranced Products
- MCS America “Education, Awareness, Resources, Support” Emphasis on recognition and activism.
- Safe Shelters Website Guide to safer building materials. Tiny house and trailer construction.
- My Chemical-Free House Non-Toxic tiny house and trailer designs, building materials information and pictures.
- Re|shelter Articles about housing, coping with MCS. Out of date housing ads.
- Recommended Architectural Features for Multi-Family Housing by Susan Malloy
Safer Housing Ads
- MCS Safe Shelter USA (Yahoo Group) is a forum for housing wanted and housing available ads, including short term housing and trailers.
- Our Toxic Times, a monthly newsletter published by CIIN, has housing ads. (406) 547-2255
- The Multi-Unit Environmental Housing Page at EI Wellspring.
- The Environmental Health Bulletin is an email newsletter with housing ads. To join, email: email@example.com
- See also MCS Friends’ Housing Listings, our Housing Initiatives Archive and the pamphlet Tips for Finding Safer Housing.
HUD Housing Information for Disabled People
National Center for Environmental Health Strategies, Inc. Housing advocacy and information.
Watch for the link to the upcoming Guide to the HUD Section 8 Housing Program for Persons Disabled with Multiple Chemical Sensitivity.
This soon-to-be-released guidebook is a treasure trove of hard-earned information, tips, and resources for people with MCS who are navigating the Section 8 housing program. The guidebook will point you to the most relevant information to be found in the following HUD webpages.
- Housing Choice Voucher Program Guidebook Twenty-four chapters including portability, special housing types, search term extensions, and higher rent standards for disabled people.
- Housing Choice Voucher Home Ownership Guidebook Page 33 of this document (page 43 of the PDF) gives MCS as an example of a disability that might require home ownership as a reasonable accommodation. The best way to navigate this document is to click and drag on the gray side-bar.
- To look up HUD regulations and notices go to portal.hud.gov. Enter the notice number or document name in the search bar. Such as: PIH 2013-18 (exceptions to the payment standard), or PIH 2013-19 (search term extensions for disabled people.)
Pesticide Information and Alternatives
- Non-toxic and pesticide-free pest control information. Stephen Tvedten.
- National Pesticide Information Center. (800) 858-7378. The NPIC is a free service provided by Oregon State University in cooperation with the EPA. It’s open from 8:00am to 12:00pm Pacific time Mon. — Fri. “NPIC provides objective, science-based information about pesticides and pesticide-related topics to enable people to make informed decisions.”
- California Pesticide Illness Query. A searchable database of pesticide exposure incidents in California including symptoms, type of exposure (drift, residue, etc.), and pesticide.
- PAN Pesticides Database. Pesticide Action Network database.
- IPM – Housing and Urban Development Search Results. Information about Integrative Pest Management in Public Housing. See especially this document , which mentions MCS.
- Beyond Pesticides. Organic food purity advocacy, pesticide alternatives, activism.
Local Area Support Groups
Eastern Time Zone
- MACI — Massachusetts Association for the Chemically Injured, Boston Mass
- CSDA — Chemical Sensitivity Disorder Association, Washington D.C. Metro Area
- Atlanta Georgia HEAL Chapter
Central Time Zone
- Chronic Fatigue Fibromyalgia Support Group, Chicago IL
- Luncheon Group, Schaumberg IL. Share, Support, Socialize. Request contact info from MCS Friends (248) 301-2283 Leave message.
Mountain Time Zone
- HEAL of Southern Arizona
PO Box 36404
Tucson AZ 85740-6404
Phone contacts: Madeline: 520-297-7992 Ariel: 520-797-4585
- Rocky Mountain Environmental Health Association Colorado
Pacific Time Zone
- Environmental Health Network of California
- Washington State MCS Network This website has contacts throughout WA, some of which are out dated. It also contains state specific accommodation information.
Canadian Support Groups
- Environmental Health Association of Quebec Click here for their French (Francais) Language website.
- Environmental Health Association of Ontario
Other Lists of Local Groups
New: Map of MCS People around the World. View map, view or take survey, or add yourself to the map.
Medical Discussion and Support Groups
If you have suggestions for sites related to chemical sensitivities please contact us.